Still Sick but Some Good News

I saw my doctor (PCP) on Tuesday and he started me on a new medication for my ears. Yesterday I felt a little better, but the pain came back last night and was also in my right ear, more than it had been so far. This is day two of the new medication so hopefully it will take effect today or tomorrow, so that I can get some relief. Because of the ear pain, and my cute granddaughter Ava staying the night and sleeping in our bed with us, I didn’t get a lot of sleep last night.

I also saw my oncologist on Tuesday and discussed the side effects that I am dealing with from the chemo. He initially talked about reducing or cutting out the Oxaliplatin, which is one of the two chemo drugs in FOLFOX, but I quickly suggested that we try it for at least one more treatment. I can certainly deal with the neuropathy that it causes if it will help kick this cancer’s butt!

The doctor also said that he only wants to do two more chemo treatments before sending me for a new PET scan. That is awesome because he originally wanted to do at least six treatments, and has reduced it to just four, before the new scan! I am waiting for scheduling to call me with the date, which should be in or around the second week in January.

While there, we also moved my chemo days from Monday to Tuesday, so that Tina doesn’t have to keep switching her Sundays at work to join me at chemo. Having her there with me helps me tremendously and makes it a lot easier for me to bear; I think I would be really bummed out if I had to go alone! Tina has been my rock through all of this and I am blessed to have such a loving, caring, and devoted wife!

Lastly, we scheduled my next appointment with Dr. Phinney at the Toledo Clinic Cancer Centers for January 20th. I am both excited and worried about this, for obvious reasons, and one other reason. Obviously I don’t want to hear that the cancer isn’t reacting to the chemo, or is spreading/growing. Also, January 20th is my beautiful bride’s birthday and I don’t want any potential bad news to wreck the day that is supposed to be all about her.

But I promised her and myself that I wouldn’t let myself get too ahead in the game, and try not to worry about what may or may not happen at that appointment. I am trying really hard to remain focused and keep my head in the fight. I am so grateful that I have the relationship with God that I do, so that I can turn this kind of stuff over to Him and His will! I may have to turn it over to Him multiple times a day sometimes, but I still can and will continue to do just that.

Sick and Tired

After three days of antibiotics, my ear and jaw are not feeling any better. I was up half the night trying to get comfortable and using a heating pad on my ear for minor relief. Today Tina told me to take the day off and stay home and rest, as much as I can.

I called my doctor office this morning but can’t get in until tomorrow at 7:30am so I have at least a few more days of this before I feel better. And, since I’m completely out of sick and vacation days and don’t get paid for days I take off, tomorrow I’m going to have to suck it up and go to work.

I’m getting ready to try to take a nap and I am hoping and praying that I am able to get at least an hour or two of uninterrupted sleep and wake up feeling even just a little better. I have never in my life had an earache that hurts like this one does and have a whole new respect for my daughters, who both have had their fair share of earaches in life.

I just want to get some sleep and have this pain go away…

Still Waiting

Well it’s been 24 hours and the antibiotics haven’t helped at all yet. My left ear and the left side of my jaw is still hurting pretty badly and pretty regularly, especially when I eat or yawn. On the bright side, my right ear is doing okay and I hope that continues.

I slept for almost twelve hours last night and it felt great. Then I did a whole bunch of nothing all day and spent the afternoon and early evening watching a few movies that I’ve been wanting to catch up on. The Magificent Seven (2016) and Hell or High Water were both really good and Mechanic: Ressurection was pretty good, too.

Now I’m watching the UFC 206 event on TV and plan to go to bed soon, so that I can get some more good rest, and make it to church in the morning. Being sick sucks and I am so hoping that when I wake up in the morning my ear and jaw is feeling better.

Second Round of Chemo In the Bag

So now that my second round of chemo is done, I have to say that the side effects have been exponentially worse than the first round. I am really trying to remain positive and keep my nose to the grind, but to be honest, so far this week has been a lot harder to do that.

The nausea has been worse, though I have been able to control it with the medication. The neuropathy has been way worse, including severity of the burning/tingling and the spreading of it. Last round I had it a little in my fingers and toes but this week it has been from about mid-palm down on both hands, pretty steadily.

Then there’s the cold sensitivity, which has been quite a bit worse. I found out that, even with socks on, my feet get cold on the bare floors in our house. Touching simple things like an interior door knob can set it off. And don’t even get me started about the cold weather and the wind right now, because it makes going outside a huge ordeal.

And, after all that, I can’t forget the fatigue. I have been feeling so tired and drained that I am fighting to make it through a full day of work without a nap. Today I worked for four hours and then came home and slept for three hours, and already I am ready to go to bed. I don’t really ache and my body doesn’t hurt, I am just so tired that I can’t stand it. The nausea also makes this worse because the medication that they gave me also makes me very tired.

I am going to keep pushing forward and I keep asking God to help me with all of this, but I have to be honest and admit that I am worried about what the next round will bring. If these side effects keep getting progressively worse each time, I am not sure how I am going to be able to work and live life.

Great Clips is Just Great!

So I have been seeing some minor hair loss the past few days, mostly just when I dry my hair in the morning. I use a white towel and my short dark hair has been steadily becoming more prevalent on the towel. To me, it’s the least important of the side effects, because I have kept my hair very short for close to the past couple of decades. At one point I even shaved my own head with a razor weekly, for over a year. When I go to Great Clips every other week to get my hair cut, they know to use the clippers with a 1 1/2 on the top and no guard on the sides, with a high fade.

When I went to get my hair cut this time, I happened to have my chemo pump attached, and I was immediately told by my stylist that she would pray for me. How cool is that?! Then, while she is cutting my hair, she informs me that Great Clips gives free haircuts to cancer patients in treatment! I was completely blown away. Such a simple little thing, but it meant so much to know that someone in upper management at Great Clips cares enough about cancer patients to roll this out company wide.

The name of the charity is Clips of Kindness and, after her own battle with cancer, Rhoda Olsen (CEO) started the charity in 2011. Because of this charity, all of the Great Clips locations around the world offer free haircuts to any cancer patient who is undergoing treatment. With everything going on in the world today it is so nice to see that, even during a difficult time in life like battling cancer, there are people out there who care enough to help others, even if they don’t personally know them.

Ironically I was so stunned by the situation that I left Great Clips and totally forgot to tip my stylist. However I ran over there today and dropped off her tip and apologized. At first she wouldn’t take it, and said that my haircut was free. But I insisted and told her that while I appreciated that, she still did a great job (as always) and deserved a tip.

And now I am going to tell everyone that I meet in the cancer sector, whether they be patients, doctors, nurses or anyone else, just how great Great Clips is and to take advantage of their generosity!

Round Two is Tomorrow

Tomorrow I go in for round two of my chemo and this time they’re adding Avastin to the mix. While this is not my first time for the chemo, it is for Avastin, and I am more than a little worried about what wonderful side effects that the Avastin will bring. Well, that and the fact that first time they do the Avastin, it takes an additional 90 minutes on top of the 3+ hours that I already have to be there for chemo.

I am also a little worried because a few people that I know who have gone through chemo have told me that the nausea and other side effects from chemo get worse as the treatments continue. There were a few days the week of my first treatment that I couldn’t get through any meals without taking my anti-nausea medicine, so the idea of it getting worse is not getting me all psyched up for my treatment tomorrow.

So far I have been getting off pretty lightly, I think, considering what I have heard from other people. But if it gradually gets worse as you go, that is going to suck big time. I know I don’t really have another choice, but it is making it harder to remain positive about the whole process.

Genetic Counseling and a Movie

This morning before I went to work I had an appointment at Flower Hospital for genetic counseling. When I got there I didn’t have a clue what that term meant, but I was quickly taught all about it. Genetic counseling is a family history with relation to cancer, and chemical/laboratory testing of both blood and saliva. The goal is to find specific markers in my DNA that may show a higher than normal likelihood that I may develop other types of cancer. They can even determine the type of cancer that I have a higher chance of getting. It can also help my children to know what they need to look for with their own health as they get older.

Instead of having Flower Hospital do it, I opted to go with a study being done through the Ohio State University, called the Ohio Colorectal Cancer Prevention Initiative. I did this partially because it doesn’t run through my insurance, and is free of charge. I also did it because, as a cancer patient, I want to help all of the organizations that I can to help other people get a jump on cancer. Lastly, I did it because if they find the DNA markers in my genes, which is known as Lynch Syndrome, the study will also perform the same tests on my biological children for free.

Then I went to work and got quite a bit accomplished, even with a short day. Now I am getting ready to head home to pick Tina up and we are going to meet Mark and Michelle at the Franklin Park Mall to watch Dr. Strange. I can already smell the popcorn 🙂

… and many more…

I woke up this morning and immediately thought, “hey, it’s your birthday!” Then I instantly thought, “what if this is your last one?” What a grim way to start a day, especially one that is supposed to be filled with happiness and celebration.

Then this afternoon I went and renewed my driver license, and the thought “I wonder if I’ll make it another four years to do this again” popped in my head. Yeah, the negative thoughts were still there, and apparently not ready to leave yet.

After work, all my kids and grandchildren came over to have cake and ice cream and celebrate my birthday. Again, those bad thoughts popped up when I thought to myself, “I wonder if I’ll be here to do this again next year.” I really can’t say where these thoughts were coming from, but they were getting old.

I’m sure my age had a little something to do with all of these crazy and depressing thoughts. But I think the biggest reason is of the cancer diagnosis. I am trying to remain positive and keep my head in the right place, but the fact that I am doing chemo is a not so friendly reminder of what I am really facing: my own mortality. And I have to admit that it scares me at times, some more so than others.

Today Was a Good Day

Today was a much better day. Of course my best laid plans to get a good night sleep failed, but that is my own fault for turning on the UFC Fight Night at midnight that I had recorded earlier in the evening. But even with about five and a half hours of sleep, I seemed to have a little more pep in my step when I woke up. Being almost a week out from starting chemo, and a few weeks out from my last surgery, I think my body is just feeling more healthy.

After picking Tina up from work I came home and watched a little TV, and then went to church, and heard a great message. After that I went to work for a quick minor emergency (DNS was failing on the LAN) and then ran to the store for some groceries. When I got back home I made myself a nice lunch of burritos and homemade queso dip, did some dishes and cleaned up the kitchen, and watched a movie with David (my youngest son).

Before long it was time to take Tina to work and then I came home and finished up the dishes and then went outside for almost an hour and got half of the back yard cleaned up with the leaf blower. After a quick shower I am getting ready to watch tonight’s The Walking Dead and try to get some sleep. So yeah, feeling better helped me to be more productive today, and it made me feel more like my old self.

Just Another Day

Today has been another one of those days. I only slept for about 4 hours last night and did very little all day, other than an unproductive trip to Best Buy, watching some TV, and a pretty crappy nap. Here it is a little after 10:00 and I am sitting in bed typing this, and watching Suicide Squad. I am planning on trying to go to sleep about midnight, because I seem to keep waking up around 3:00 am and it is starting to get on my nerves.

I am hoping to get a solid night’s sleep tonight, so that I can be well rested and ready to go to church on Sunday. My faith is important to me and I could certainly use it while trying to kick this cancer. While on that subject, I’ve decided that tomorrow is the day that I am going to start the “read the Bible in a year” plan with the You Version app. I’ve always wanted to, and it just seems like something that I should get started on, considering my current health circumstances.

So I’m off to watch my movie and try to get some rest. With any luck, it’ll work out for me for once.